Shortly after Rheumatology for All was founded, a rheumatologist in the United States, Frey Ayele, who is Ethiopian, introduced us to the rheumatology clinic program at Tikur Anbessa Hospital in Addis Ababa. We investigated and found the conditions to be ideal for our first project. The clinic: 1. was not staffed by rheumatologists, but by the internal medicine department; 2. had one exam table and no running water to enable joint aspiration, and 3. offered no privacy for consultation or examination. The faculty and medical residents were acutely aware of the impact the lack of rheumatology expertise had on their patients.
Ethiopia’s population is over a hundred million people with no practicing rheumatologist. Although disability generally increases with age, rheumatic diseases, which are among the leading causes of disability worldwide, often affect children and adults in their prime. In addition to needless suffering resulting in under or un-employment or even mortality, the practical effect of the lack of rheumatology expertise is profound:
Rheumatology for All raised funds that enabled Birhanu Demelash Desyibelew, MD and Becky Abera Adugna, MD to completed two-year fellowship in rheumatology at the University of KwaZulu Natal in Durban, South Africa from October 2018 to 2021.
They have returned to Addis Ababa where they have academic appointments at the Tikur Anbessa Hospital. There they not only treat patients with rheumatic diseases but teach other physicians and health care professionals the diagnosis and treatment of rheumatic diseases. Birhanu and Becky have the skills and credibility to advocate for necessary medications and diagnostic tools. Becky and Birhanu are already seeing over 100 patients a week in the rheumatology clinic and have also been involved in several collaborative research projects including one funded by the International League of Associations for Rheumatology studying the impact of Covid 19 on rheumatology patients
In order to address the lack of rheumatology expertise in Ethiopia while Birhanu and Becky were in training, Rheumatology for All started a visiting professor program to provide second (of three years) residents intensive training in rheumatology. Following a successful launch of the program by Drs. Meltzer and HItchon in August 2018, Rheumatology for All arranged for professors to visit Tikur Anbessa Hospital in September and December 2018.
The visiting rheumatologists served as teachers and mentors to residents by lecturing and giving hands-on instructions. The residents were required to give lectures and case presentations, as they were being groomed to teach the junior residents. The in-person visiting professor program was converted to virtual with the onset of the Covid19 pandemic. Once Becky and Birhanu returned to Addis Ababa, as had been planned, there was no further need for the visiting professor program.
In the spring of 2021, Rheumatology for All started a sixteen-week virtual series of educational sessions in rheumatology at the University of Rwanda. This was very well received and the program is being repeated in 2022. RFA is proud to have international faculty from not only the western hemisphere, but Africa as well contributing to this program.
One of the most effective and inexpensive drugs for treating rheumatoid arthritis is methotrexate. We are developing guidelines for the use of methotrexate in Ethiopia. This is needed because existing guidelines may not be adequate/applicable because of local infections such as TB, cultural differences related to toxicity, and the expense of blood testing.
These are the hands of a six year old in Kenya with juvenile idiopathic arthritis who will never have a normal life. With therapy this child could have had a chance.
This Ethiopian man has late stage gout and can no longer work. With inexpensive medication this severe arthritis could have been prevented.
Shez is now in her thirties. Even a lay person can see the damage to her hips. Shez can no longer work because of the arthritis and is afraid she will not realize her dream of marriage and children because of the disability. It is likely that with proper treatment she would not have had such destructive arthritis and could have led the life she had hoped for.
Need to get in contact with us? Send us an email and we will get back to you as soon as possible. Otherwise feel free to make a difference: Donate!